Scott Hogan says the loss of a young child feels like the world is revolving without you in it.
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Mr Hogan and his partner Shari lost their second son Porter, 23 days after his birth on April 22, 2016.
"While at home just living life, our son Porter started crying and we couldn't get him to stop," Mr Hogan said.
"Newborns cry so at first we were not stressed. But as it went on we became more concerned and we drove him to the hospital to get checked. (We didn't know at the time that) Porter had a blood clot blocking his small bowel and it had died from lack of oxygen.
"The following days were a living nightmare full of drips, buzzers, another surgery and confronting medical conversations. Porter was on life support the whole time.
"On Friday morning, on the 22nd of April 2016, Porter took his last breath on my chest before he went to heaven.
"It's such a devastating thing and our eldest boy was two-year-old at the time. It was a real shock to the system.
"Time itself doesn't stand still but it feels like life has completely stopped. The world continues to revolve without yourself, you're lost and in the unknown at a time when you're seeking answers but no one can give them to you."
He is encouraging members of the public to help fundraise and spread awareness about Sudden Infant Death in Infancy (SUDI) on Red Nose Day on August 14.
Mr Hogan said the Red Nose counselling and support services available to Australian families experiencing the loss of a baby are vital.
"For us Red Nose was a vital piece of the puzzle after we lost our son, Porter. The service they provide is invaluable," he said.
"The big thing for us was the counselling we were able to undertake with the Red Nose team. It gives you a real opportunity to help navigate the grief process.
"The year following the loss of Porter was a very dark and hard place to be. It got to a point where we had to make a decision whether this was going to ruin our life, or accept this is the life we have been given. We can make the most of what we have or be miserable for what we don't have."
Each year Scott and Shari celebrate Porter's birthday and the day he passed away with family and close friends. They also keep a portrait photo of him close at hand and atop the Christmas tree at home.
"We often talk about him and what he would look like today," Mr Hogan said.
"If you have a family member or a friend who has experienced loss, it is often not what you say that makes a difference. Something as simple as sitting with them and talking about their child could make the most difference.
"This Red Nose Day we'll be buying a red nose in memory of Porter and using the opportunity to raise awareness in our workplaces and through our friends.
"The simple act of donating makes all the difference to families like ours in their time of need."
Every day in Australia there are nine babies and young children who die suddenly. Since 1988 there has been an 85 per cent reduction in SIDS thanks to research and awareness.
You can support Red Nose Day here.
You can contact the Red Nose 24/7 Grief and Loss Support Line on 1300 308 307.
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