CARERS Roger and Belinda Ball say they have had their application for funding to help their disabled son, Glen, with living expenses knocked back countless times.
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At the heart of the issue is the lack of available funding to access the required support their son needs.
They say they know what support is available.
"We've never had any funding because we never previously applied for any, but when we came up here from Victoria a few years ago we started to try and apply for things because we wanted to get Glen living independently and so far we have zero, but we just keep applying," Mr Ball said.
"We are half doing it on our own and it'd be really nice if we could get some individual funding. Recently we've been applying and applying and one time they'll say his needs aren't enough and the next time they'll say his needs are too much. It makes you wonder if it's just an excuse to knock them back.
"All the support is here, but you've got to have the funding to pay for it. Without it, it's not much use."
Mr Ball said the funding the Ball's were asking from the government was not money, but rather the services the money would buy.
"For example, Glen's house mate Josh's package would be enough to pay for his hour a day services. Then there are other packages for social things, like if Glen was wanting to go out you can get packages that pay a worker to come and take him out.
"At the moment if they want to go to the Glasshouse for music or something we have to come down and take them there, wait for a few hours and then take them home."
The family admit to being concerned about the effects of the National Disability Insurance Scheme which came into effect through a trial period which started in July this year which involves a gradual transition from the old system over the next two years.
"All the talk is you roll your existing funding into it, but we don't have existing funding to roll in," Roger said.
The work of almost 2.7 million carers around Australia was celebrated last week during Carers Week events with well over 300,000 carers aged under 24 years who care for a family member or friend.
Their unpaid work is believed to be collectively worth around $40 billion to the Australian economy.