The nine-year-old had a stage four medulloblastoma tumour removed last year and has endured a massive battle to become healthy again.

Caleb finished his second cycle of chemotherapy in early February and his mum Suzanne Turpie said he did much better the second time around.

"During the first cycle of chemotherapy he got very sick and was in hospital a lot longer then anticipated," she said.

"Caleb still gets very sick from the chemo but he battles on. He's started to get a bit of an appetite back after losing this during radiation and this is positive."

Caleb will be the first child at Sydney Kids Hospital to go on this next trial.

"We are hoping Caleb will respond okay but we will just have to wait and see," Suzanne said.

"Most of our information is coming from overseas where the trial has so far shown to be more effective than the standard treatment for Caleb's type of brain cancer.

"Through the fundraiser held at Port City Bowling Club and the money tins around there has been approximately $9000 raised."

That money is extremely vital for the family and ensures they have adequate medical supplies for Caleb's feeds, costs of ongoing hiring of the wheelchair as well as helping to cover house repayments.

"As I no longer have my wage it has been really tough," Suzanne said.

"The money also continues to help us pay for when we go to Sydney. Although the majority of the Ronald McDonald House is bulk billed, there are minimal accommodation costs to pay them every time we go down.

"We also needed to buy Caleb a new bed as he previously shared a bunk bed with his brother and he could no longer use this."

St Joseph's Primary School, where Caleb is a student, has been amazing according to Suzanne.

"They have shown tremendous support towards Caleb and our family and the whole school body have completely pulled together and rallied behind Caleb," she said.

"To read their school newsletters and see the events they have planned for Caleb brings tears to our eyes and leaves us speechless in the sense that they just do."

A recent "superhero" themed day at the school put a smile on Caleb's face.

"The superhero day was a beautiful gesture. I think of Caleb as a superhero but he is so many," she said.

The family return to Sydney on March 1 for the next cycle of chemo.

"We are still hoping Caleb can get full mobility back and that we can eventually do away with the wheelchair but until then we will do what we can to make things 'easier' for Caleb," Suzanne said.

"Caleb is so amazing through all of this. He gets up each and every day and faces whatever the day throws at him with whatever he can muster.

"He smiles, he jokes and he laughs and when we feel overwhelmed quite often you will find him holding our hand, consoling us. He truly is an amazing young boy.

"It's Caleb's 10th birthday on the March 17 and our wish for him is to keep fighting. If love was enough, Caleb would be healed 100 times over by now."