Today is one week after World Multiple Sclerosis Day, and the Lake Cathie resident said it is a fitting time to start the conversation about stem cell therapy.

Gary Olive said none of the medications his wife has taken aim to cure her, and instead focus on managing the inflammatory disease.

The unfortunate reality is the drugs only reduce the chance of 'flare-ups' of the disease by about 30 per cent.

Mrs Olive has only had five such events since being diagnosed.

The most recent was a few months ago when she lost the feeling in her left leg and had to be hospitalised for three days.

She said one of the drugs she has taken in the past rendered her unable to get out of bed because of the side effects of intense stomach cramps and diarrhoea.

"It's alright for the doctor to say 'It's an expensive drug, you need to give it more of a try,' but I just got so crook it wasn't worth it," she said.

Mr Olive is hopeful that crowd funding on website www.mycause.com.au will help raise the $12,000 needed for stem cell therapy as part of a five-day trial in Queensland.

The high cost is because state and federal governments do not support the treatment.

"It doesn't matter what you've got wrong with you, if stem cell therapy is going to help then the government aren't interested," he said.

Mrs Olive had a simple message for those making decisions in Canberra and Port Macquarie MP David Gillespie, a medical doctor with decades of experience treating the sick.

"I just wish they'd look at it more clearly," she said.

"I think they have tunnel vision about supporting the pharmaceutical industry," Mr Olive added.

After a stay in Newcastle's John Hunter Hospital Mrs Olive was contacted by a drug company representative and asked to continue taking their product.

"My doctor said I might as well go off it if it was interfering with my everyday day," she said.

"And this representative calls up and tells me I'm lucky to be on the drug and I should persevere with it."

Mrs Olive was hopeful there "could be an angel out there" who sees her plight and offers to help.

The couple's entire family has through the horrors of debilitating illness for nearly three decades.

They lost their first-born son Mathew to ducheene muscular dystrophy ten years ago, when he was aged 25.

The mad Canterbury-Bankstown supporter's funeral was attended by two members of the club, who gave Mrs Olive a flag to place over the coffin.

Mr Olive said his wife was ready to try the treatment because she was "sick and tired of being sick".

"Chris and I are very realistic as well as optimistic: if she can regain some of her strength and get rid of the worst 'hidden' symptoms that would be a fantastic result," he said.